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Your Story Is Not Just Yours
There’s a greater community waiting to learn from what you’ve been through
Nov 27
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Stephen V. Smith
2
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Your Story Is Not Just Yours
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Now You Can Listen
The Live Life Rare podcast brings you insight in audio format
Nov 14
•
Stephen V. Smith
3
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Now You Can Listen
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Learning, Walking, and Teaching
Three key roles we need to live a rare life
Oct 13
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Stephen V. Smith
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Learning, Walking, and Teaching
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Presence Over Presents
Focused attention is the best birthday gift of all
Oct 2
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Stephen V. Smith
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Presence Over Presents
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Our Neighbor Knew How to Live Life Rare
When asked what I mean by living a rare life, there's no better example than Ralph Dawson
Aug 20
•
Stephen V. Smith
5
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Our Neighbor Knew How to Live Life Rare
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Is family the best ICU medicine?
How the presence of family helped me fight ICU delirium and forge a stronger recovery
Aug 13
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Stephen V. Smith
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Is family the best ICU medicine?
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When ICU Does More Harm Than Good
Leaving ICU is a sign that a patient has survived. But what comes next doesn't always look like survival.
Aug 6
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Stephen V. Smith
2
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When ICU Does More Harm Than Good
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Why I Write About Rare Disease
Chronicling my rare disease journey is not only for me
Jul 30
•
Stephen V. Smith
2
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Why I Write About Rare Disease
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Live Life Rare
Stories and resources to help you discover and pursue what a rare life means to you
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Stories and resources to help you discover and pursue what a rare life means to you
By Stephen V. Smith
· Launched 3 years ago
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