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Our Neighbor Knew How to Live Life Rare
When asked what I mean by living a rare life, there's no better example than Ralph Dawson
 • 
Stephen V. Smith
2
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Is family the best ICU medicine?
How the presence of family helped me fight ICU delirium and forge a stronger recovery
 • 
Stephen V. Smith
1
When ICU Does More Harm Than Good
Leaving ICU is a sign that a patient has survived. But what comes next doesn't always look like survival.
 • 
Stephen V. Smith
2
Why I Write About Rare Disease
Chronicling my rare disease journey is not only for me
 • 
Stephen V. Smith
2
Get Your Toolkit Ready for the Next Challenge
What helps you cope when adversity comes your way?
 • 
Stephen V. Smith
1
When You Grow Up
Rare disease changes your story, but you have the power to direct the rewrite
 • 
Stephen V. Smith
You Need a Project Management Degree
Managing rare disease requires skill and patience
 • 
Stephen V. Smith
1
Good Grief
What role does grief play in living with a rare disease?
 • 
Stephen V. Smith
5
Live Life Rare
Live Life Rare
Stories and resources to help you discover and pursue what a rare life means to you
Recommendations
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Hello, Adversity
Hello, Adversity
Christopher Anselmo

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