My Interview With Wes Michael of Rare Patient Voice
The group connects patients and caregivers with the opportunity to voice their opinions and contribute to the rare disease community — and beyond
Pharmaceutical companies and others providing health care services need quality information about the markets they serve. While doctors are a decent source of data, the real value lies in people like you and me. Patients and caregivers have a front-row seat to the conditions they live with, and their thoughts and experiences can help corporations better serve our communities.
Rare Patient Voice bridges the gap between those who need this market research and those who are living the experiences. In the latest episode of the Live Life Rare podcast, I interview Wes Michael, founder and president of Rare Patient Voice. We discuss the work his company is doing, why it’s important for patients and caregivers to be compensated for their contributions to research, and how you can participate in research opportunities.
Listen to my interview with Wes in your favorite podcast player, or by clicking the “Listen Now” button below. And if you enjoy the show, please share it with your friends and family members who may benefit from this information.
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Do you know someone who wants to discover and pursue what a rare life means to them? Please pass along this newsletter. We’ll continue to encourage one another as we grow this community.
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