What role does grief play in living with a rare disease?
Thank you ! Sharing your feelings and experiences with those of us who understand is a way to support each other— all a part of grieving process.
Yes, this is something I can relate to in my own life. Every time a milestone in my disease occurred (and still occurs), it definitely follows the stages of grief.
Indeed. So often we neglect the importance of community when living with a rare disease.