5 Comments
User's avatar
Annette f reynolds's avatar

Thank you ! Sharing your feelings and experiences with those of us who understand is a way to support each other— all a part of grieving process.

Expand full comment
Chris Anselmo's avatar

Yes, this is something I can relate to in my own life. Every time a milestone in my disease occurred (and still occurs), it definitely follows the stages of grief.

Expand full comment
Stephen V. Smith's avatar

Writing this from a bed in neuro ICU, I agree Christopher!

Expand full comment
Chris Anselmo's avatar

Sorry to hear that! Wishing you the best.

Expand full comment
Stephen V. Smith's avatar

Indeed. So often we neglect the importance of community when living with a rare disease.

Expand full comment