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Apr 26, 2023Liked by Stephen V. Smith

Thank you ! Sharing your feelings and experiences with those of us who understand is a way to support each other— all a part of grieving process.

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Yes, this is something I can relate to in my own life. Every time a milestone in my disease occurred (and still occurs), it definitely follows the stages of grief.

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Writing this from a bed in neuro ICU, I agree Christopher!

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Sorry to hear that! Wishing you the best.

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Indeed. So often we neglect the importance of community when living with a rare disease.

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