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Why I Believe in Living a Rare Life
Ten years ago, I did what few patients do — I walked upright, of my own volition, into the neuro intensive care unit of a Birmingham hospital.
Feb 28, 2025
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Stephen V. Smith
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What, A Decade?
My life completely changed 10 years ago - for better AND for worse
Dec 16, 2024
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Stephen V. Smith
1
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What If It All Goes Right?
Making decisions through the eyes of an optimist
Aug 9, 2024
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Stephen V. Smith
7
3
Rethinking the Wind
“And the wind that blows the candles out, well it also fans the flame”
Feb 28, 2024
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Stephen V. Smith
5
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A Great Start to a Big Rare Week
I began this week hiking to a marvel of nature. I’ll end this week on the surgeon’s table.
Feb 27, 2024
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Stephen V. Smith
5
3
My Interview With Wes Michael of Rare Patient Voice
The group connects patients and caregivers with the opportunity to voice their opinions and contribute to the rare disease community — and beyond
Feb 23, 2024
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Stephen V. Smith
1
Your Story Is Not Just Yours
There’s a greater community waiting to learn from what you’ve been through
Nov 27, 2023
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Stephen V. Smith
4
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Now You Can Listen
The Live Life Rare podcast brings you insight in audio format
Nov 14, 2023
•
Stephen V. Smith
3
2
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Live Life Rare
Stories and resources to help you discover and pursue your rare life
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