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Our Neighbor Knew How to Live Life Rare
When asked what I mean by living a rare life, there's no better example than Ralph Dawson
Aug 20
•
Stephen V. Smith
4
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Our Neighbor Knew How to Live Life Rare
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2
Is family the best ICU medicine?
How the presence of family helped me fight ICU delirium and forge a stronger recovery
Aug 13
•
Stephen V. Smith
2
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Is family the best ICU medicine?
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When ICU Does More Harm Than Good
Leaving ICU is a sign that a patient has survived. But what comes next doesn't always look like survival.
Aug 6
•
Stephen V. Smith
2
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When ICU Does More Harm Than Good
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July 2023
Why I Write About Rare Disease
Chronicling my rare disease journey is not only for me
Jul 30
•
Stephen V. Smith
2
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Why I Write About Rare Disease
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May 2023
Get Your Toolkit Ready for the Next Challenge
What helps you cope when adversity comes your way?
May 31
•
Stephen V. Smith
2
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Get Your Toolkit Ready for the Next Challenge
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When You Grow Up
Rare disease changes your story, but you have the power to direct the rewrite
May 15
•
Stephen V. Smith
2
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When You Grow Up
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You Need a Project Management Degree
Managing rare disease requires skill and patience
May 3
•
Stephen V. Smith
1
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You Need a Project Management Degree
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April 2023
Good Grief
What role does grief play in living with a rare disease?
Apr 26
•
Stephen V. Smith
2
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Good Grief
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5
Too Tired to Swing
When there's not enough fight to get off the mat
Apr 20
•
Stephen V. Smith
6
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Too Tired to Swing
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April 2021
There's Always Something Around The Corner
How do you prepare when you don't know what you don't know?
Apr 3, 2021
•
Stephen V. Smith
3
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There's Always Something Around The Corner
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March 2021
Life Inside The Margins
Can we teach ourselves to sacrifice the good in order to experience the great?
Mar 13, 2021
•
Stephen V. Smith
2
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Life Inside The Margins
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Growing A Rare Community
We have much to learn from one another as we live a rare life
Mar 1, 2021
•
Stephen V. Smith
4
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Growing A Rare Community
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