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What, A Decade?
My life completely changed 10 years ago - for better AND for worse
Dec 16
•
Stephen V. Smith
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What, A Decade?
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2
August 2024
What If It All Goes Right?
Making decisions through the eyes of an optimist
Aug 9
•
Stephen V. Smith
7
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What If It All Goes Right?
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3
February 2024
Rethinking the Wind
“And the wind that blows the candles out, well it also fans the flame”
Feb 28
•
Stephen V. Smith
5
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Rethinking the Wind
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2
A Great Start to a Big Rare Week
I began this week hiking to a marvel of nature. I’ll end this week on the surgeon’s table.
Feb 27
•
Stephen V. Smith
5
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A Great Start to a Big Rare Week
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3
My Interview With Wes Michael of Rare Patient Voice
The group connects patients and caregivers with the opportunity to voice their opinions and contribute to the rare disease community — and beyond
Feb 23
•
Stephen V. Smith
1
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My Interview With Wes Michael of Rare Patient Voice
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November 2023
Your Story Is Not Just Yours
There’s a greater community waiting to learn from what you’ve been through
Nov 27, 2023
•
Stephen V. Smith
4
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Your Story Is Not Just Yours
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1
Now You Can Listen
The Live Life Rare podcast brings you insight in audio format
Nov 14, 2023
•
Stephen V. Smith
3
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Now You Can Listen
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2
October 2023
Learning, Walking, and Teaching
Three key roles we need to live a rare life
Oct 13, 2023
•
Stephen V. Smith
2
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Learning, Walking, and Teaching
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Presence Over Presents
Focused attention is the best birthday gift of all
Oct 2, 2023
•
Stephen V. Smith
3
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Presence Over Presents
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August 2023
Our Neighbor Knew How to Live Life Rare
When asked what I mean by living a rare life, there's no better example than Ralph Dawson
Aug 20, 2023
•
Stephen V. Smith
5
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Our Neighbor Knew How to Live Life Rare
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Is family the best ICU medicine?
How the presence of family helped me fight ICU delirium and forge a stronger recovery
Aug 13, 2023
•
Stephen V. Smith
2
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Is family the best ICU medicine?
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When ICU Does More Harm Than Good
Leaving ICU is a sign that a patient has survived. But what comes next doesn't always look like survival.
Aug 6, 2023
•
Stephen V. Smith
2
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When ICU Does More Harm Than Good
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