Live Life Rare

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Get Your Toolkit Ready for the Next Challenge
What helps you cope when adversity comes your way?
 • 
Stephen V. Smith
1
When You Grow Up
Rare disease changes your story, but you have the power to direct the rewrite
 • 
Stephen V. Smith
You Need a Project Management Degree
Managing rare disease requires skill and patience
 • 
Stephen V. Smith
1
April 2023
Good Grief
What role does grief play in living with a rare disease?
 • 
Stephen V. Smith
5
Too Tired to Swing
When there's not enough fight to get off the mat
 • 
Stephen V. Smith
April 2021
There's Always Something Around The Corner
How do you prepare when you don't know what you don't know?
 • 
Stephen V. Smith
March 2021
Life Inside The Margins
Can we teach ourselves to sacrifice the good in order to experience the great?
 • 
Stephen V. Smith
Growing A Rare Community
We have much to learn from one another as we live a rare life
 • 
Stephen V. Smith
February 2021
What does it mean to live a rare life?
Let's discover the answer to that important question together.
 • 
Stephen V. Smith
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