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Get Your Toolkit Ready for the Next Challenge
What helps you cope when adversity comes your way?
May 31
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Stephen V. Smith
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Get Your Toolkit Ready for the Next Challenge
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When You Grow Up
Rare disease changes your story, but you have the power to direct the rewrite
May 15
•
Stephen V. Smith
2
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When You Grow Up
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You Need a Project Management Degree
Managing rare disease requires skill and patience
May 3
•
Stephen V. Smith
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You Need a Project Management Degree
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April 2023
Good Grief
What role does grief play in living with a rare disease?
Apr 26
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Stephen V. Smith
2
5
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Good Grief
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Too Tired to Swing
When there's not enough fight to get off the mat
Apr 20
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Stephen V. Smith
5
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Too Tired to Swing
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April 2021
There's Always Something Around The Corner
How do you prepare when you don't know what you don't know?
Apr 3, 2021
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Stephen V. Smith
3
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There's Always Something Around The Corner
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March 2021
Life Inside The Margins
Can we teach ourselves to sacrifice the good in order to experience the great?
Mar 13, 2021
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Stephen V. Smith
2
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Life Inside The Margins
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Growing A Rare Community
We have much to learn from one another as we live a rare life
Mar 1, 2021
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Stephen V. Smith
4
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Growing A Rare Community
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February 2021
What does it mean to live a rare life?
Let's discover the answer to that important question together.
Feb 21, 2021
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Stephen V. Smith
5
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What does it mean to live a rare life?
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