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Rethinking the Wind
“And the wind that blows the candles out, well it also fans the flame”
 • 
Stephen V. Smith
2
A Great Start to a Big Rare Week
I began this week hiking to a marvel of nature. I’ll end this week on the surgeon’s table.
 • 
Stephen V. Smith
3
My Interview With Wes Michael of Rare Patient Voice
The group connects patients and caregivers with the opportunity to voice their opinions and contribute to the rare disease community — and beyond
 • 
Stephen V. Smith
Your Story Is Not Just Yours
There’s a greater community waiting to learn from what you’ve been through
 • 
Stephen V. Smith
1
Now You Can Listen
The Live Life Rare podcast brings you insight in audio format
 • 
Stephen V. Smith
2
Learning, Walking, and Teaching
Three key roles we need to live a rare life
 • 
Stephen V. Smith
1
Presence Over Presents
Focused attention is the best birthday gift of all
 • 
Stephen V. Smith
Live Life Rare
Live Life Rare
Stories and resources to help you discover and pursue your rare life
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