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Your Story Is Not Just Yours
There’s a greater community waiting to learn from what you’ve been through
 • 
Stephen V. Smith
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Now You Can Listen
The Live Life Rare podcast brings you insight in audio format
 • 
Stephen V. Smith
2
Learning, Walking, and Teaching
Three key roles we need to live a rare life
 • 
Stephen V. Smith
1
Presence Over Presents
Focused attention is the best birthday gift of all
 • 
Stephen V. Smith
Our Neighbor Knew How to Live Life Rare
When asked what I mean by living a rare life, there's no better example than Ralph Dawson
 • 
Stephen V. Smith
2
Is family the best ICU medicine?
How the presence of family helped me fight ICU delirium and forge a stronger recovery
 • 
Stephen V. Smith
1
When ICU Does More Harm Than Good
Leaving ICU is a sign that a patient has survived. But what comes next doesn't always look like survival.
 • 
Stephen V. Smith
2
Why I Write About Rare Disease
Chronicling my rare disease journey is not only for me
 • 
Stephen V. Smith
2
Live Life Rare
Live Life Rare
Stories and resources to help you discover and pursue what a rare life means to you
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